School is out soon and summer will be here. The summer months provide for some of the most memorable moments for families. It can also cause some stressful situations for families with children with special health care needs. Here are some articles that provide tips and suggestions from other families:
Learn About, Supported Decision Making
Supported Decision Making agreements are formalized, written documents between an individual and their supporters who have agreed to help them make decisions.
Under Indiana’s new law, those agreements must have at least one supporter and list what decision-making areas the supporter with assist with. Each SDM agreement must be in writing, dated and signed by the adult in the presence of a notary.
School rainforest creators
How many teaching assistants can create a rainforest experience that sparkles with light? That’s just what Georgios Ignatiou and Krishna Ellsworth, pictured above, have done at Grafton Primary School in Islington, London.
Walking for Dreams is just around the corner and we would love to have you join us. Gather your family, and your dog, and come out for a fun day with ASK.
When: May 19, 2019
Registration – 1:00 p.m.
Walk – 2:00 p.m.
Where: Walking for Dreams registration area and beginning and ending of the Walk will be at the north end of the Canal at Buggs Temple. Buggs Temple is located at 337 West 11th Street between Meridian and Dr. Martin Luther King Drive.
You can register to walk at www.walkingfordreams.org.
We are The Arc – The Arc of LaGrange County
Friday, we visited The Arc of LaGrange County in northeast Indiana. A dedicated staff provides employment and day programs, residential services and respite care through a unique respite care home. They also provide a baby monitoring program at no charge. Once a month, new parents receive information on developmental milestones infants should be reaching and consultations are offered to families if there are any concerns. Infants and toddlers who need supports and services are referred to First Steps, Indiana’s early intervention program.
INDIANAPOLIS – On Wednesday, April 24, Governor Eric Holcomb signed legislation recognizing Supported Decision-Making Agreements as a valid way for someone to demonstrate decision-making capacity in Indiana and requires Less Restrictive Alternatives (LRAs), including Supported Decision-Making to be considered before a court will appoint a guardian.
The Senate Appropriations Committee approved an amendment to the state budget that would provide a $10 million “bucket” for FSSA to fund direct care providers, including the FSW waiver, CIH waiver, group homes, First Steps and other providers.
Here is the breakdown between the House and Senate versions of the budget:
House – $20 million per year
Senate – Current $11 million level of spending, plus money form the “bucket.”
House – No additional money
Senate – Money from the “bucket”
House – No additional money
Senate – No additional money
Study calls for interventions for adults | High noon at High Court | Charity slams Labour over neurodiversity | Potential treatment for Fragile X
Read More for Upcoming Local Events, Northeast IN Autism Support Groups, and Local Autism Services and Programs.
Important deadlines are coming for the 2019 session of the Indiana General Assembly. All committee meetings must be done in the House on April 9th and in the Senate on April 11.
Our work continues to secure funding to increase wages for Direct Support Professionals. Your phone calls and emails are still needed!
It’s no secret that a sibling of a child with disabilities or a chronic illness faces unique challenges. Their brother or sister naturally receives a bigger share of the attention, and the sibling may have feelings of resentment, jealousy, anger, worry and other negative emotions. However, their unique situation also allows them to develop positive qualities. Family Voices Indiana sat down with an adult sibling, Lanea Bonney, for a chat about her experience as a sibling to a brother with multiple medical and developmental challenges.
Note: When parents tune in the needs of each child, they can help ease difficulties. We’ve offered some resources for families at the end of this article.
Congrats to Family Advocates Ofelia and Cyndi
Congratulations to Ofelia Jimenez and Cyndi Johnson, family advocates for The Arc Advocacy Network, who were honored last week for their advocacy and volunteer efforts in their community.
Ofelia received the Individual Adult Volunteer Award from Hammond Indiana Mayor Thomas McDermott Jr for her work with Grupo Hope, a parent support group based in East Chicago, IN that provides information and training to parents of children with disabilities and social activities for children and their families.
In Honor of World Down Syndrome Day March 21, 2019
Thanks to all the families, advocates, and professionals who make a difference
in the lives of people with Down syndrome.
Nataly Jimenez, daughter of Ofelia Jimenez, family advocate for The Arc Advocacy Network asked us to share her message on World Down Syndrome Day,
“I am dancer, a singer, a warrior, a believer, and I have Down syndrome. Same dreams, same hopes, same fears, what is the difference?”
Thank you, Nataly, for the difference you make in the world each and every day.
Call to end benefit reassessments
People with learning disabilities should be exempt from benefit reassessments. That’s the view of Dan Scorer, head of policy for the charity Mencap…
We are The Arc Awareness Day!
On Wednesday, March 6, as part of Disability Awareness Month, we want to raise awareness about The Arc across the state in our first We are The Arc Awareness Day.
Have you received services from The Arc of Indiana, The Arc Master Trust or Erskine Green Training Institute?
Do you work for a chapter of The Arc, or are you a volunteer or board member?
If you use social media, on March 6, share how The Arc has made a difference in your life with the hashtag #WeareTheArc.
Autism Society of Indiana: Excited to Announce Relay4Autism in Highland!
We are excited to announce we will be partnering with the North Township Trustee to have a Relay4Autism in Highland!
August 3, 2019
9:00am to 1:00pm
Wicker Memorial Park
8554 Indianapolis Boulevard
Highland, IN 46322
Relay4Autism will have a Resource Fair with vendors ready to talk with you about their local autism services and resources, like North Townships Emergency Identification Bracelet Program. While learning about autism, individuals and families affected by autism can have fun with tons of entertainment: carnival games, balloon artist, face painters, music, sports area, craft area, sensory area, emergency vehicles, and lots more! Something for everyone!
Northeast Indiana Autism Insider
Check out our newsletter to learn more about upcoming events, northeast IN autism support groups, and local autism services and programs!
First Steps, ABLE Accounts Bills Scheduled for Ways & Means Hearing
HB 1216, legislation to increase funding for Indiana’s First Steps, early intervention program; and HB 1350, legislation to create a tax credit for contributions to Indiana ABLE accounts, will be heard in the House Ways and Means Committee, Tuesday, February 5, 10:30 a.m. in Statehouse room 404.
Please contact your state representative and ask for their support of HB 1216 and HB 1350. This is particularly important if your representative is a member of the House Ways and Means Committee…
Join the ASK Team: Parent Liaison Opening
About Special Kids (ASK) is currently hiring a 20 hour per week Parent Liaison. This staff position will support our efforts state wide and will provide information, one-on-one educational training, and support to families of children with special needs. The positions require reflective listening skills, understanding of individuals from diverse cultures, ability to communicate effectively both on the phone and through written email and letters, and a basic understanding of the services and supports available to children with disabilities and their families. The ideal candidate is passionate about advocating and working with other parents to improve outcomes for children with special needs. This position will be 20 hours per week. Other benefits include 9 paid holidays per year and paid time off for sick and vacation time.
FORT WAYNE, Ind. (WANE) – In a true example of Christmas magic, Austin Maners, 4, and the mall Santa that fed him cookies and milk in a viral photo were reunited.
Austin’s mom, Beth Salzbrenner took him to Glenbrook Square Mall Sunday to get a special picture with Santa. While they were there, they asked if Santa would take a photo while pouring “milk” (formula) into Austin’s feeding tube that he relies on.
Salzbrenner then posted the photo on her Facebook page, where it quickly went viral.
Welcome to FV Indiana’s Guide to the Legislative Session. This year brings a “long session” that will begin on January 3, 2019, and is expected to last through April 29, 2019. This session will provide many opportunities for families to be involved, share your experience, and build relationships with legislators that will impact current and future decisions. This guide is intended to be a reference issue; in it you will find information on how a bill becomes a law, definitions and translations of acronyms and information on the House and Senate leadership. We encourage you to contact your legislators, make the effort to introduce yourself, share your perspective, and continue to build a relationship.
Watch FV Indiana and other sources for action alerts as the session progresses.
If you have information about the session to share please call us at 844 F2F INFO or email email@example.com.
Happy Holidays from The Arc! May the holiday spirit be with you and your family today and throughout the New Year.
You still have time to make a donation to help those affected by autism find meaningful jobs in Indiana. Our ASI #GivingTuesday Campaign will go until December 15th!
There are three ways to give.
- Facebook Fundraiser on ASI’s Facebook page
- Go to our website www.autismsocietyofindiana.org at the top right donate button
- Send a check made out to:
Autism Society of Indiana
1800 N. Meridian St. Suite 600
Indianapolis, IN 46202)
When you make a donation it will 100% STAY in Indiana! We appreciate your continuous support by making sure every individual and every family affected by autism in Indiana will receive high-quality services they deserve!
Autism Eye Star of the Month
Jonathan Baron, Dance Teacher
Jonathan Baron has achieved such success in teaching dance to children with autism that he has scooped an Inspirational Teacher Award. The dance teacher at Hillingdon Manor School in West London won the accolade at this year’s National Association for Special Educational Needs (Nasen) Awards.
He introduced dance to the school to provide an expressive outlet to help students develop skills on and off the dance floor. His lessons are said to have helped provide structure and familiarity, as well as boosting individuals’ well-being, building muscle memory, balance, body awareness, sensory co-ordination and spatial awareness. His support is also said to have helped each dancer’s self-belief and given them more confidence to flourish.
In 2013 he founded street dance group Autism With Attitude at the school. In May this year the group, pictured above right, won second place in the European United Dance Organisations Championships in Germany. They were the first special needs dance group to compete in the finals, with judges apparently unaware of the students’ autism.
To help students overcome anxieties over making the trip, the group visited Heathrow Airport, where staff helped to familiarise them with check-in and security procedures. They also had the opportunity to experience flight conditions in a flight simulator.
Jonathan told Autism Eye: “The approach I have to my students is similar to the way I myself have been taught. I teach them like they are no different to anybody else and time and time again it has shown to work wonders for their development.
“At the end of the day students do not wish to be treated differently because of their autism. Our approach, ‘you can achieve anything if you work hard enough for it’, has resonated really well with all students and is largely the reason they have become so good so quickly.”
Cruising for Dreams
From the moment you cross the gangway, you’ll feel as though you’ve been swept away to the beautiful Greek Isles aboard a luxury cruise liner. Enjoy an evening of relaxation and fun with a Greek-inspired dinner, deck games, silent auction, art gallery, and more!
Cruising for Dream supports Erskine Green Training Institute in providing post-secondary vocational training opportunities for people with disabilities. Since EGTI’s doors opened in 2016, over 100 students have completed the program and the employment rate for graduates is consistently over 80%.
VIP Tickets include admission to the VIP Reception inside EGTI from 5:30 – 7 pm.
The reception will allow guests to meet current students and tour the EGTI classroom!
Vibes | A life-changing tool for sound sensitivity
Know someone on the spectrum that’s sensitive to sound? Tired of bulky earmuffs that prevent them from being able to hear anything at all? Vibes Hi-Fidelity Earplugs (as seen on ABC’s Shark Tank and in Autism Parenting Magazine) are reusable earplugs that lower the volume of your environment to a more comfortable level, but still allow you to hear everything around you clearly. Plus, Vibes come with three sizes in each package, and their clear design makes them much more discreet than earmuffs or bright foam earplugs.
You can use promo code “NAA2018” to get 15% off plus free shipping when you order from Vibes’ website.
Click here to learn more about Vibes Hi-Fidelity Earplugs and how they can be life-changing tools for individuals on the spectrum.
Cords that clip onto the ends of the earplugs and allow them to be hung around the neck are available here.
Autism Link to Post-Traumatic Stress
Many autistic people might have some form of post traumatic stress disorder (PTSD), researchers believe. They are investigating whether people with autism are more vulnerable to PTSD. Many autistic people might have some form of post traumatic stress disorder (PTSD), researchers believe. Dr Connor Kerns: she says there should be better assessment of post traumatic stress disorder in people with autism Among them is Dr Connor Kerns, assistant professor of psychology at the University of British Columbia in Vancouver, Canada. She believes that PTSD in autism is more common than reported in most studies to date. Very stressful, frightening or distressing events can cause PTSD, which is an anxiety disorder. Kerns says most research has either suggested PTSD rates are very low in autism at between 0 per cent and 3 per cent, or failed to make any assessment. Learn More
Happy Holidays from ASK
During this special time of year, we would like to wish you and your family a very happy holiday. Thank you for letting us get to know you and your family and allowing us to be a small part of your journey. We look forward to a wonderful 2019 and continuing to help families of children with special needs.
Educational Perspectives Survey
Within this survey, Indiana educators and families are being asked their personal views regarding the desirability and feasibility of students with disabilities being included in the general education setting. This survey will be distributed annually to determine if there is a shift in attitudes and beliefs over time in providing equitable access to students with disabilities in general education settings.
Network of 200 Genes Linked to Autism
Researchers have discovered a network of more than 200 genes linked to autism.The findings are part of a research programme led by the University of Toronto’s Professor Benjamin Blencowe.Researchers have discovered a network of more than 200 genes linked to autism. Researchers Thomas Gonatopoulos-Pournatzis and Professor Benjamin Blencowe, whose work has identified more than 200 genes linked to autism. The scientist said the work has revealed how very short segments of genes with links to autism become spliced. Network of 200 genes key to brain wiring and behaviour. The network of more 200 genes works to control the splicing.That process diversifies protein molecules in the brain and other parts of the body.Toronto scientists showed previously how when this process is disrupted it is closely linked to altered brain wiring and behaviour found in autism. Researcher Thomas Gonatopoulos-Pournatzis led the study. He said understanding how the gene segments become spliced means “you can potentially target it using rational approaches to develop therapies”. Scientists have linked hundreds of genes to autism. This makes its genetic basis difficult to untangle. Alternative splicing of small gene fragments, or microexons, has emerged as a unifying concept in the molecular basis of autism.The concept emerged after scientists discovered the splicing had been disrupted in a large proportion of people with autism. Microexons affect the ability of proteins to interact with each other during the formation of neural circuits in the brain.They are especially critical because of the role they play in combining proteins during the splicing process. Microexons perform a type of microsurgery on proteins to alter their function. Learn More
ASI Giving Tuesday
Next Tuesday is #GivingTuesday!
Greg Boyce, Executive Director talks about our ASI #GivingTuesday Campaign asking for help to create a scholarship fund for individuals with autism find meaningful jobs!
All the money donated will 100% STAY in Indiana!
CDC Resources, Hoosier Prairie Arc, is accepting applications for Executive Director.
CDC Resources Executive Director Job Announcement
Kim Opsahl to Serve as DDRS Associate Director
Kim Opsahl, who began her career in the disability field as a direct support professional in college, has been appointed to serve as the assistant director of the Division of Disability and Rehabilitative Services.
In their announcement, DDRS noted, “Kim brings over 20 years of experience working with state government and advocating on behalf of various programs and services to support Hoosiers with disabilities to this new role. Most recently, she worked with the American Network of Community Options and Resources as the director of state partnerships and special projects. In this national role, she served a liaison for ANCOR’s State Association members and provided subject matter expertise in a number of areas including Medicaid home and community-based services. Prior to working with ANCOR, she served as the president/CEO for the Indiana Association of Rehabilitation Facilities. Kim earned her law degree from the Indiana University Robert H. McKinney School and is admitted to practice in the state of Indiana.”
Kim currently serves on the advisory committee of The Arc Master Trust and has joined us as a chef at Indy Cooks for The Arc.
Hope Dashed Over Medical Cannabis
HOPES DASHED OVER MEDICAL CANNABIS
The mother of a young boy with epilepsy says new prescribing guidelines for medical cannabis are so restrictive “almost no-one” will get it. The law changed on 1 November to allow access to medical cannabis under prescription in the UK. However, Hannah Deacon, who fought to give her son medical cannabis, says guidelines on prescribing it are far too restrictive.The mother of a young boy with epilepsy says new prescribing guidelines for medical cannabis are so restrictive “almost no-one” will get it. Hannah Deacon with son Alfie: “Without access to this medicine his epileptic seizures will come back,” she says. As a result, she says thousands like her have had their hopes dashed since the drug became available on prescription.150 seizures a month before the change in the law, Deacon had received a special temporary licence to give the drug to six-year-old son Alfie Dingley. He had been suffering 150 seizures a month. But she said the change in the law meant the Government took away the temporary license.They said he no longer needed the license because a doctor can now write him a prescription, as with any other medicine. Learn More
Get Out & Vote!
Be sure to vote on Election Day, Tuesday, November 6!
Visit our Public Policy Advocacy Center to find election information, including candidates in your district and where to vote.
2018 Founder’s Breakfast
About Special Kids held it’s 2nd Annual Founders Award Breakfast on November 1st. This year we honored two Indiana companies, No Label at the Table and BraunAbility. We were also pleased that Indiana Lt. Governor Suzanne Crouch, who chairs the Intellectual and Developmental Disabilities Task Force, was able to join us and speak about the work of the Task Force. She and ASK Board President, Joshua Pascoe, presented the awards to our honorees.
Antibiotic Tested as Autism Treatment
Researchers from the Cincinnati Children’s Hospital Medical Center, the University of Pittsburgh, and the University of Missouri, think the antibiotic may help to treat brain inflammation. Dr Logan Wink is an associate professor in psychiatry at Cincinnati Children’s Hospital. Wink, who leads the study, said minocycline “is known to have direct neuroprotective effects, as well as anti-inflammatory properties”.Health firm Quadrant Biosciences is helping to fund the work. It will collect saliva from people involved in the study to assist with its research on the genetics of autism. Learn More
Join Our Team!
Area Support Coordinator (Part-time, Southwestern Indiana)
Providing support for individual and families affected by autism through education, advocacy, support groups and/or service referrals. Making sure that individuals and families affected by autism get the highest quality service available in their local area. Learn More
Career Specialist ( Part-time, Indianapolis)
The career specialist is responsible for working with individuals affected by autism who are looking for meaningful employment by providing the comprehensive, coordinated, effective, efficient and accountable services needed to prepare for, enter, engage in and retain employment consistent with each individual’s strengths, resources, priorities, concerns, abilities, capabilities and informed choice. Learn more.
2018 Election Update
Whose Leading Indiana
After all the campaigning, the 2018 elections are now over, and new leaders, as well as incumbents, will be leading Indiana. Here is an overview of the 2018 election results.
Republican Mike Braun beat out incumbent Democrat Joe Donnelly with a margin of 52-44. This leaves Republicans in control of the U.S. Senate.
Indiana’s Senate Delegation
Todd Young and Mike Braun
Not too much change up happened in Indiana’s Congressional races as Representatives Visclosky and Carson are the only Democrats representing Indiana in Washington, D.C. However, two rookies have joined their Republican colleagues to represent the Hoosier state in our nation’s capital – Jim Baird and Greg Pence. A blue splash was made in Congress as the Democrats have now taken control of the U.S. House of Representatives, winning the majority in the lower chamber.
Indiana’s Congressional Delegation:
District 1- Peter Visclosky
District 2- Jackie Walorski
District 3- Jim Banks
District 4- Jim Baird
District 5- Susan Brooks
District 6- Greg Pence
District 7- Andre Carson
District 8- Larry Bucshon
District 9- Trey Hollingsworth
Statewide Elected Officials
At the state level, Republican women swept the podium.
Secretary of State
Also on the ballot was a key question asking voters if Indiana’s Constitution should require a balanced budget. More than 71% of Hoosiers supported the measure.
Indiana’s Senate Democrats gained a new senator and defeated a long-time Republican incumbent. Jon Ford beat Mike Delph to represent Senate District 38 at the Statehouse. Ford is the first openly gay lawmaker to be elected to serve in the General Assembly.
The Senate Republicans still maintain their Super Majority with 40 Republicans to 10 Democrats.
Indiana House of Representatives
House Democrats picked up at least two more seats, inching closer to breaking the Republicans Super Majority. With some delays in vote counting in Northwest Indiana the results are still out to see if Republican incumbents Julie Olthoff and Ed Soliday will remain in the Statehouse.
- Find Your Local, State and Federal Representatives
- Sign-Up to Receive Legislative Updates & Action Alerts from The Arc of Indiana
- 2019 Public Policy Agenda
- 2019 Public Policy Agenda Executive Summary
Infants’ pupil responses may help predict later ASD
The pupillary responses of infants to changes in light may help researchers diagnose autism spectrum disorders (ASD) very early in life, according to a new study. Read More
Study finds no effect on metformin on memory in individuals with ASD
Increasing numbers of individuals with autism spectrum disorders (ASD) are taking metformin to counteract weight gain caused by antipsychotic drugs such as risperidone (Risperdal). While studies differ as to the results of metformin on memory-with some reporting that it enhances memory, and others reporting that it impairs it-new research suggests that it has neither a positive nor a negative effect on memory in individuals with ASD. Read More
2019 Legislative Session Organizational Day
The Indiana General Assembly will meet at the State House on Tuesday, November 20, 2018 for the 2019 Legislative Session Organizational Day. Both the Indiana House of Representatives and Senate will be in session that day. It is a good day to visit with your legislators before the actual 2019 Session begins in January.
The Time Is Now!
Right now, there’s an opportunity to provide input to the ID/DD task force. The last time they asked for input on this level was in 1997; it’s for the purpose of gathering input to prepare a comprehensive plan for implementation of community-based services provided to people with intellectual and other disabilities.
Meetings are being held around the state, so please try find time to share your thoughts and perspectives. Often, providers have the time to provide input. They do it during their paid work day. The state hears from them….sometimes only from them. It is imperative that families find time to provide input on policies and procedures that affect our daily lives.
They accept public comments (limited to two minutes each) at these meetings.
If you don’t have the time or transportation to attend them in person, you can watch online HERE.
You can also submit written comments via email to Kristina.Blankenship@fssa.in.gov
Art & Autism. Autism & Art. Meet Jigsaw Grant…
Emerging as one of the most notable young artists of the new millennium, Grant Maniér (maun-yay), a young talented Eco-Artist combines his two worlds: autism and art. His obsession for paper became his form of art therapy.
Six Ways to Support an Autism Family
Autism can be a tricky disability because it isn’t easily understood. It isn’t always obvious. It presents differently in each person and the symptoms and behaviors can change from day to day. You don’t need to be a behavior expert or psychiatrist to support a family with an autistic member. Here are some ways you can support an autism family, even if you have no knowledge of autism. Honestly, these are just great ways to support a young family, disability or not. Read more…
What You Need to Know About Neurodiversity
Early Learning Champion Alert:
Is a communication and collaboration gap holding back Hoosier children? In our newest “Mile Markers” report, Early Learning Indiana explores how early childhood programs and elementary schools could more fully align.
“Mile Markers: Smoothing the transition from Pre-K to Elementary School,” urges greater continuity between early learning and K-3 standards, assessments, curricula and professional development standards; the collection of longitudinal data across the two systems to better track growth; and the coordination of kindergarten transition efforts between early education programs and schools.
“Right now we have two very different systems that often don’t support one another – and we are losing opportunities because of it,” said Dr. Karen Ruprecht, Early Learning Indiana’s Director of Research and Practice. “By making some policy changes to line up Indiana’s early education system with our elementary system, we can achieve savings and ensure better outcomes for our kids.”
In 2016, Indiana spent $24 million in kindergarten remediation, the most spent on any grade level.
This is the third in a series of in-depth policy briefings examining different challenges and opportunities surrounding Indiana’s On My Way Pre-K program. The series supplements Early Learning Indiana’s “On the Road to Pre-K Expansion” roadmap, which was released in June.
Funded through a grant from the Joyce Foundation, the full issue brief and additional reports can be viewed here.
Please take a few minutes to review this policy briefing and share it with your friends, colleagues and early education advocates. Also, please encourage them to visit our advocacy page and sign up to be an Early Learning Champion so they can receive information and alerts like this.
Thanks for all that you do for Indiana’s children and families!
– Early Learning Indiana
Rare Genetic Mutation May Give Insight into How the Brain is Wired
Did Chinese scientists find autism’s missing puzzle piece?
Time to renew your Autism Awareness License Plate!
We appreciate your generous support in purchasing or renewing your Autism Awareness License Plate!
When you purchase an Autism Awareness specialty license plate for your motorcycle, passenger vehicle, or truck, you are directly helping the Autism Society of Indiana (ASI) to provide continuous support and training for Indiana families and individuals living with autism. More importantly, you are spreading autism awareness throughout the community, which starts conversations about autism along with the willingness of those wanting to help and support everyone affected by autism.
ASI receives $25 from each purchase which supports our programs around Indiana, and helps us to provide services and supports at no cost to individuals with autism and their families.
Follow this link for more information about purchasing or renew your Autism Awareness License Plate!
Giving Tuesday – Autism Research Institute
2017 marks the Autism Research Institute’s 50th Anniversary… 50 years of serving the autism community and promoting and supporting research. Later this month on #GivingTuesday, November 29th, we are launching #Give50, a campaign to raise support in honor of this milestone.
Click here to donate now!
All IN 4 Pre-K Coalition
With the General Assembly continuing to debate the expansion of high-quality pre-k in Indiana, the All IN 4 Pre-K coalition is excited to share new support for this movement and two easy things you can do to advance this cause.
In the last week, both United States Senator Joe Donnelly and Lieutenant Governor Suzanne Crouch have spoken out in support of expansion this year. You can read Sen. Donnelly’s statement here, and read Lieutenant Governor Crouch’s statement here. Along with a number of editorials and columns in newspapers across the state, including this recent editorial from the South Bend Tribune, the momentum is clearly on our side.
Here are 2 things you can do right now to move the pre-k issue forward:
- Please reach out to Senator Donnelly and Lieutenant Governor Crouch today to thank them for their support.
- Contact your state legislators and the Governor to let them know why you support pre-K expansion.
Together we can make a difference for the next generation of Hoosiers!
Learn more – http://www.allin4prek.com/
Autism and Health: A Special Report by Autism Speaks
Advances in understanding and treating the physical and mental health conditions that frequently accompany autism. Click here to learn more.
4th Annual Autism Resource Fair Huge Success
STORIES ON THE SPECTRUM
Autism Awareness Month is officially over, but we continue the celebration of acceptance all year long. Pathfinder is sharing stories about people from within the autism community. – “Stories on the Spectrum.”
In part five of our series, we are grateful to share a story written by Diedra Freedman, autism advocate, lawyer and mother of Andy, a teenage boy on the spectrum. Read her inspiring story about creating every possible opportunity to enable their son to use his strengths to contribute to their community.
EACS approves backpack limits: Autistic students will be assisted, officials say
Richard and Jaco: Life with Autism
“I’m being led by the hand by my child, not the other way around.” – Jaco has autism. His dad, Richard worries about how he’ll fit into the adult world. Watch the video
When I was a child, music, laughter, and a conscious focus on my abilities filled our home. The radio, always tuned to classical or popular music stations, encouraged singing, movement, and playful narration. My parents, who were quite progressive for the times, defied the conventional wisdom of the mid-1960’s; that I be institutionalized. Instead, they were determined to provide me with a foundation that emphasized music, creativity, movement, sensory integration, narration, and imitation. In today’s terms, we would call their efforts an intensive home-based early intervention program, probably most closely related to the cognitive-developmental systems approach called the Miller Method…Read more
With Star Wars receiving national attention as of late I recently stumbled upon this heartfelt story from Colin, a 7-year-old boy with autism who wants to be a Jedi Knight. He got upset though when he realized that Jedi’s are not allowed to get married. Colin at that moment decided to write a letter to Star Wars creator George Lucas asking if he would be able to change the rules for him…Read more
An autism spectrum disorder (ASD) diagnosis can be difficult news to hear. Parents of newly diagnosed children, or adults with autism, actively seek out treatment methods that relieve the anxiety and stress that can accompany autism. When anxiety and stress are relieved, daily functions improve, sometimes dramatically. One gentle and reliable method that can often provide this welcome relief for people with ASD is craniosacral therapy.
What Is Craniosacral Therapy?
Craniosacral therapy is a manual, hands-on form of therapy that promotes improved health, both physical and emotional, via gentle touch to the head, neck, and spine…Read more
It was an ordinary weekday morning in September. I was sitting at the kitchen counter working on an assignment for one of my graduate school classes when the phone rang. The caller ID told me it was someone from my son Alexander’s school, and my mind immediately began to race. Was there a problem? What could it be?
“We had an incident and need you to pick your son up from school.” These were the words I heard from Alexander’s special educator when I answered the phone. Alexander, who had just begun fourth grade, had had a meltdown at school and no one could calm him down. My heart sank…Read more
They don’t make toys like they used to. It’s not uncommon to still see the dolls and action figures of yesteryear, but as we have progressed scientifically and experienced innovative breakthroughs across technologies, toys today are more than that. They’re interactive companions, sometimes designed from a pure entertainment perspective. And, more often than not, they are keenly developed as a medium of education to foster personal development and growth.
Technology is increasingly becoming a part of nearly every facet of our lives—which means it makes sense to introduce modern tech toys and gadgets early on to children, under supervision, to build familiarity with how these devices work…Read more
As we all know, no two children diagnosed with autism spectrum disorder are alike. Experts agree, children with autism learn differently and have a wide range of developmental and educational needs. Unfortunately, teachers and support staff are often unfamiliar with the special needs of kids diagnosed with autism and struggle to teach them effectively. And, too often, administrators and teachers don’t fully understand the autism diagnosis and deem meltdowns and other communication challenges as “bad” behavior.
This typically makes it a huge challenge for families to find the “right” educational fit. All kids deserve to be surrounded by people who believe in them, understand them, and support their needs…Read more
Finding the best method for treating autism is often a challenge for the loved ones of children and adults with autism spectrum disorder (ASD). Because no two people with ASD are exactly the same, it’s vital to choose a method of treatment and therapy and an intervention plan that is tailored to address specific needs…Read more
Early Signs of Autism
Early signs of autism spectrum disorder (ASD) can be detected in infants, yet many children with autism do not receive a diagnosis until the ages of two or three. While not every autistic baby is able to be diagnosed as an infant, there are many benefits to receiving a diagnosis before reaching preschool age.
Check out our complete guide on how to recognize signs of autism in infants and children:
Autism Research Institute – September 2018 Newsletter
Autism|Eye – September 2018 News
The Arc of Indiana – Newsletter 9-23-2018
HANDS in Autism – News & Updates – September, 26th 2018
The Arc of Indiana – Newsletter 9-9-2018
HANDS in Autism – News & Updates – August, 22nd 2018
The Arc of Indiana – Newsletter 8-19-2018
Autism Research Institute – August 2018 Newsletter
ACT TODAY – Autism Care and Treatment – August 2018 Newsletter
The Arc of Indiana – Newsletter 8-12-2018
HANDS in Autism – News & Updates – August, 8th 2018
The Arc of Indiana – Newsletter 8-5-2018
The Arc of Indiana – Newsletter 7-29-2018
Autism|Eye – July/August 2018 News
HANDS in Autism – News & Updates – July, 26th 2018
Early Learning Indiana – July, 19th 2018
The Arc of Indiana – Newsletter 7-15-2018
Autism Research Institute – July 2018 Newsletter
The Arc of Indiana – Newsletter 7-8-2018
HANDS in Autism – News & Updates – July, 11th 2018
ACT TODAY – Autism Care and Treatment – July 2018 Newsletter
ASK – Answers for families of kids with special needs – June 2018 Newsletter
ACT TODAY – Autism Care and Treatment – June 2018 Newsletter
Autism|Eye – Summer 2018 News
Autism Research Institute – June 2018 Newsletter
Autism Research Institute – May 2018 Newsletter
The Arc of Indiana – Newsletter May 20th, 2018
HANDS in Autism – News & Updates – May 23rd, 2018
Autism Speaks – E-Speaks Newsletter – May 2018
The Arc of Indiana – Newsletter May 2018
ACT TODAY – Autism Care and Treatment – May 2018 Newsletter
ASK – Answers for families of kids with special needs – May 2018 Newsletter
The Arc of Indiana – Newsletter 5-6-2018
HANDS in Autism – News & Updates – April, 25th 2018
The Arc of Indiana – Newsletter 4-22-2018
HANDS in Autism – News & Updates – April 2018
The Arc of Indiana – Newsletter 4-15-2018
Family Voices Indiana – News & Updates – April 2018
HANDS in Autism – News & Updates – April, 11th 2018
Autism Research Institute – April 2018 Newsletter
The Arc of Indiana – Newsletter 4-8-2018
ASK – Answers for families of kids with special needs – April 2018 Newsletter
The Arc of Indiana – Newsletter 3-25-2018
HANDS in Autism – News & Updates – March, 28th 2018
Autism|Eye – March 2018 News
Autism Speaks – E-Speaks Newsletter – March, 2018
ASK – Answers for families of kids with special needs – March 2018 Newsletter
The Arc of Indiana – Newsletter 3-04-2018
HANDS in Autism – News & Updates – February, 28th 2018
Autism Speaks – E-Speaks Newsletter – January, 2018
HANDS in Autism – News & Updates – January, 24th 2018
HANDS in Autism – News & Updates – January 2018
ASK – Answers for families of kids with special needs – January 2018 Newsletter
HANDS in Autism – News & Updates – December 27, 2017
The Arc of Indiana – Newsletter 12-17-2017
ACT TODAY! – Autism Care and Treatment – November 2017 Newsletter
The Arc of Indiana – Newsletter 11-19-2017
HANDS in Autism – News & Updates – November 1, 2017
ASK – Answers for families of kids with special needs – November 2017 Newsletter
The Arc of Indiana – Newsletter 11-12-2017
The Arc of Indiana – Newsletter 10-29-2017
The Arc of Indiana – Newsletter 10-22-2017
HANDS in Autism – News & Updates – October 19, 2017
HANDS in Autism – News & Updates – October 4, 2017
Autism Research Institute – September 2017 Newsletter
The Arc of Indiana – Newsletter 10-8-2017
ACT TODAY – Autism Care and Treatment – October 2017 Newsletter
HANDS in Autism – News & Updates – September 26, 2017
The Arc of Indiana – Newsletter 09-10-2017
ASK – Answers for families of kids with special needs – September 2017 Newsletter
HANDS in Autism – News & Updates – September 6, 2017
WORKFORCE OF TODAY, WORKFORCE OF TOMORROW: The Business Case for High-Quality Childcare.
ASK – Answers for families of kids with special needs – August 2017 Newsletter
The Arc of Indiana – Newsletter 08-27-2017
HANDS in Autism – News & Updates -August 23, 2017
The Arc of Indiana – Newsletter 08-06-2017
ACT TODAY – Autism Care and Treatment – August 2017 Newsletter
Autism Society of Indiana – August 2017 Newsletter
Autism Speaks – E-Speaks Newsletter – July, 2017
HANDS in Autism – News & Updates – July 21, 2017
The Arc of Indiana – Newsletter 07-30-2017
The Arc of Indiana – Newsletter 07-09-2017
Autism Society of Indiana – July 2017 Newsletter
ACT TODAY – Autism Care and Treatment – July 2017 Newsletter
The Arc of Indiana – Newsletter 06-25-2017
What Autism Can Look Like in the Classroom
Why do those with autism avoid eye contact?
Why You Should Think About Transitions Differently
ASK – Answers for families of kids with special needs – June 2017 Newsletter
Autism Research Institute – June 2017 Newsletter
The Arc of Indiana – Newsletter 06-18-2017
ACT TODAY – Autism Care and Treatment – June 2017 Newsletter
Autism Society of Indiana – June 2017 Newsletter
ACT TODAY – Autism Care and Treatment – May 2017 Newsletter
HANDS in Autism – News & Updates – May 16, 2017
Noble Life – May 2017 Newsletter
Family Voices – May 2017 Newsletter
Read Diedra’s story here.
Special Education Services Just Got Easier. . . and Harder (The Endrew F. Supreme Court Decision in the Court’s Own Words)
The Endrew F. Decision Re-Defines a “Free Appropriate Public Education” (FAPE) for Students with Disabilities
Austism Society of Indiana – May 2017 Newsletter
The Arc of Indiana – Newsletter 04-30-2017
The Arc of Indiana – Newsletter 04-23-2017
Noble Life – April 2017 Newsletter
ACT TODAY – Autism Care and Treatment – April 2017 Newsletter
HANDS in Autism – News & Updates – April 14, 2017
ASK – Answers for families of kids with special needs – April 2017 Newsletter
Family Voices Indiana – Newsletter 04-13-2017
Unanimous ruling sides with argument of parents of son with autism
In unanimous decision, Supreme Court raises bar for special education (+video)
ACT TODAY – Autism Care and Treatment – April 2017 Newsletter
The Arc of Indiana – Newsletter 04-2-2017
Austism Society of Indiana – Action Alert – Vocational Rehabilitation Services Change
HANDS in Autism – News & Updates – March 29, 2017
Autism Research Institute – Clinical Research in Austism – March 31, 2017
The Arc of Indiana – Newsletter 03-26-2017
Families United for Support and Encouragement – News & Updates – March 23, 2017
HANDS in Autism – News & Updates – March 21, 2017
The Arc of Indiana – Newsletter 03-19-2017
Austism Society of Indiana – March 2017 Newsletter
ASK – Answers for families of kids with special needs – March 2017 Newsletter
Infant MRIs Show Autism Linked to Increased Cerebrospinal Fluid
Autism Risk Linked to Herpes Infection During Pregnancy
Brain Changes in Infancy May Predict Which High Risk Babies Will Develop Autism
Typical Male Brain Anatomy Associated With Higher Probability of Autism Spectrum Disorder
The Students Of Shema Kolainu School & Center for Children with Autism
Autism Research Institute – March 2017 Research News & Updates
HANDS in Autism – News & Updates – March 3, 2017
4C of Southern Indiana – News, Updates and Deadline to Apply for On My Way Pre-K is March 31
MIT Scientist Uncovers Link Between Glyphosate, GMOs And The Autism Epidemic
Monsanto Glyphosate Roundup Herbicide Triggers Autism in Children. MIT Scientist
The Arc of Indiana – Newsletter 02-5-2017
Autism Research Institute – February 2017 Research News & Updates
Clinical Research in Autism – Issues 28 – January 2017
HANDS in Autism – News & Updates – February 1, 2017
HANDS in Autism – News & Updates – January 20, 2017
ACT TODAY – Autism Care and Treatment – January 2017 Newsletter
HANDS in Autism – News & Updates – January 13, 2017
News & Updates from Autism Society of Indiana – January 17th, 2017
Autism Evansville News & Updates – January 15th, 2017
HANDS in Autism – News & Updates – January 5, 2017
FUSE (Families United for Support and Encouragement) – January 2017 Events and Updates
21 Chrome Extensions for Struggling Students and Special Needs
HANDS in Autism – News & Updates – December 21st, 2016
Man with autism uses track & field to springboard life achievements
Autism|Eye – December 2016 & January 2017 News
Autism Evansville – December Newsletter and January 2017 Events
The Arc of Indiana – Newsletter 12-18-2016
ACT TODAY – Autism Care and Treatment – December 2016 Newsletter
Aspie’s Perspective: How Understanding ASD Can Bridge “Inclusivity” and “Open-Mindedness” to Help Build Better Future For All People on the Spectrum
ASK – Answers for families of kids with special needs – December 2016 Newsletter
Indiana University – Local Community Cadre Newsletter – December 2016
The Arc of Indiana – Newsletter 12-11-2016
Autism|Eye – Winter 2016/2017 News
HANDS in Autism – News & Updates – December 7th, 2016
The Arc of Indiana – 2017 Public Policy Agenda
Business Leaders Support Pre-K Expansion – All IN 4 Pre-K
ACT TODAY – Autism Care and Treatment – November 2016 Newsletter
Autism|eye – November 2016 Newsletter
FUSE – Families United for Support and Encouragement – December 2016 Events
Hands of Autism Newsletter – November 2016
ARC of Indiana Newsletter – November 13th 2016
ARC of Indiana Newsletter – November 6th 2016
Folinic acid improves communication, eases autism symptoms in small study
ASK Newsletter – November 2016
HANDS in Autism® News & Updates – October 26, 2016
11th Annual Denim Diamonds Stars Sunday October 23rd
This is an auction benefiting those with autism that can be accessed on-line.
New study in San Diego reveals that an autism diagnosis can be guided by a brain scan.
If you need a speaker for an organization or group, contact the Speakers Bureau. Information
can be found on https://www.saind.org/speakers-bureau
NYSABA anounces 27th annual conference Albany NY
October 27th and 28th, 2016 www.nysaba.org
Hands in Autism at the IU school of medicine is taking a needs assessment
survey. They ask that you please take the time to fill this out. This can be found at
Read about the “Office of Disability Employment Policy” (US Dept of Labor)
October is National Disability Employment Awareness Month
Changes have been made to the FAFSA
3,800 more families needed for autism research
ARTICLE: Timing is Key to Understanding Sensory and Social Issues in Autism
9-14-2016 Unexpected improvement in core autism systems following a probiotich
Subscribe to the Schafer Autism Report www.sarnet.org
Special Education Law Blog
Autism Safety Coalition: Law to combat wandering
Adults with Autism Spectrum Disorders: Survey Takers Needed
Advocacy and Autism Votes – Autism Speaks
Autistic Self Advocacy Network www.autisticadvocacy.org
Autism Safety Coalition Law to Combat Wandering Deaths
American Autism Association https://www.myautism.org
Autism Science Foundation
ESSA Every Student Succeeds Act www.doe.in.gov/essa
Autism Spectrum Explained
Autism Treatment Center of America
Global Autism Project www.globalautismproject.org
Autism Source www.autismsource.org
NAC National Autism Center www.nationalautismcenter.org
Autism Action Network www.autismactionnetwork.org/?mobile=0
AOTA American Occupational Therapy Association, Inc.
I Care 4 Autism International Center for Autism Research and Education
World Autism Organization www.worldautismorganization.com
Autism International Foundation
International Society for Autism
Home and commonly-based services final rule state-wide transition plan.
“Controling Temper Tantrumums in Children with Autism” —
7-28-16 There is a new movie out about a young man with autism developing his own communication
skills. It is to be premiering August 5, 2016. Check your local theaters for LIFE ANIMATED.
New research on “The Huffington Post” http://m.huffpost.com/us/entry/10463702.html
Adults with ASD ARI E-bulletin www.autism.com/news_agi_ebulletin
IN autism and Autism Resource Network of Indiana (ARNI) have merged and formed one website.
They can be found at www.inautism.org
Schafer Autism Report www.autism.com/clinicalresearchinautism.com
“The Arc of Indiana ” newsletter can be found at www.arcind.org
Several Autism Articles can be found by typing in one of the article titles. Try
“Online Autism Training Shows Promise for Families”. This will lead you to those articles.
ALSO www.autismspeaks.org has many articles on differnt subjects.
An autism documentary is headed for the theaters. Watch for LIFE ANIMATED. Posted 6-17-16
Find an ineresting article at/on http://a.msn.com/05/en-us/AAh5Pyo?ocid=5c’
This article is entitled : EPILEPSY & AUTISM MAY SHARE COMMEN GROUND
Indiana Choice Scholarships Check the website for more information
PEDIATRICS has published a special issue on autism-related health issues. This can
be found in Pediatrics Feb 2016, Vol 137, Issue Supplement 2.
INDIANA GENERAL ASSEMBLY TO VOTE ON INDIANA’S ABLE ACT LAW
The Indiana General Assembly has introduced Senate Bill 11, which would create
ABLE accounts in Indiana. Like the federal law, Indiana’s ABLE accounts would allow people
with disabilities to save for “qualified disability expenses”, including: education, housing,
transportation, employment training and support, health, assistive technology and
personal support services, prevention and wellness, legal fees and other expenses
approved by the federal government for qualified ABLE programs.
People would be able to contribute to the accounts from pre-tax dollars, with a maximum annual
contribution of $14,000. The total account balance would be capped at $100,000, and would
not be counted in the $2,000 personal asset tests for public assistance benefits.
The Indiana senate is expected to vote on the bill this week. To read the full version of the bill,
visit http://iga.in.gov/legislative/2016/bills/senate/11 and click “latest version”. If this bill is
of interest to you, you may wish to contact your representatives in the Indiana Senate with
your opinion. You can find contact information at http://fifthfreedom.org/l/findreps.
UPDATE: As of March 21 the bill was unanimously passed and signed by Governor
Pence. Google “Gov. Pence signs ABLE ACT”.
2016 Indiana Bills
The Indiana General Assembly is in full swing and committees are working fast to get bills
heard in their house of origin. Soon these bills will be heard in their assigned committees.
These priority bills need action: SB11 SB278 HB1012 HB1219 HB1257.
Visit http://iga.in.gov/legislative/2016/bills/senate/11 and click “latest version”.
FSSA NEWS RELEASE
Family applications for August 2016 are now being accepted for ON MY WAY
PRE-K in the pilot counties.
Families residing in Allen, Jackson, Lake and Vanderburgh countnies must meet
the following eligibility criteria to apply:
The familly must have an income below127% of the poverty level.
The child must be 4 years old by August 1, 2016 and starting kindergarten by
Applications will be accepted until March 25, 2016.
Families who need help finding an approved PRE-K program can call 1-800-299-1627 for assist-
ance with an early learning referral specialist.
ON MY WAY PRE-K is the name of Indiana’s first-state-funded prekindergarten program, which
was approved as a five-county pilot by ther Indiana General Assembly in 2014. For more infor-
mation visit www.onmywayprek.org
The Indy Preschool Scholarship Program (Indy PSP) is the city of Indianapolis’s first ever
preschool program that provides free scholarships for children from low-income familiesl
The United Way of Central Indiana will provide program adminnistration support by managing
the application, outreach, and evaluation processes. Visit www.indypsp.org for more inform-
CONTACT INFORMATON: Nami Lemons Phone 317-234-5287 OR E-mail at
NINA MASON PULLIAM SCHOLARS PROGRAM
Nina Mason Pulliam Legacy Scholars Program wishes to invite qualifying individuals
to apply for their scholarship. Application and details can be found at
There are now a variety of funding options for ABA Therapy (As of March 3,
2016). Contact Michelle Trivedi, The Arc Insurance Project Manager, at
firstname.lastname@example.org 317-977-2375 or 800-382-9100
If you are just finding out that you have a child with special needs, you most likely want to know “what to
do next”. Their are many organizations to help direct you on the appropriate path. A few of those that
can help you get started are:
The Arc of Indiana
Family Voices Indiana
ASK (About Special Kids)
Autism Society of Indiana
IN Resource for Autism